A new short form individual quality of life measure seiqol dw. This study was carried out to investigate the usefulness of the seiqoldw to elicit information about response shifts in palliative patients. Since the seiqoldw is a selfreport instrument in which respondents nominate the five most important domains in life, interrater reliability and internal consistency were not. Agreement between the schedule for the evaluation of.
Pdf assessment of individual quality of life using the. A direct weighting procedure for quality of life domains seiqoldw. Patientperceived emotional distress caused by administration of the seiqoldw, the sip, and the sf36. An important criterion is the sensitivity of a measure for detecting clinically important changes. Hickey am, bury g, oboyle ca, bradley f, okelly fd, shannon w. The enrolment of patients has been described in detail in previous published papers 19, 22. Exercise mri highlights heterogeneity in cardiovascular mechanics among patients with fontan circulation. The sample size was based on previous data for possms 5 and seiqoldw.
Methods in this crosssectional study, patients with als in lis n 19 were interviewed on wellbeing. The schedule for the evaluation of individual quality of lifedirect weighting seiqoldw is a prevalent facetoface interview method for measuring quality of life by integrating respondentgenerated dimensions. Neurological disability was assessed using the expanded disability status scale edss 22. Seiqol dw administration was completed and deemed valid in all 48 cases mean age 60 years, 58 % women, median expanded disability status scale score 8. This study followed an idiographic approach in order to identify the areas of life most relevant for the interviewed myeloma. The seiqoldw index score was calculated as the sum of the weighted scores for each cue. Therefore, our study aimed to analyze the agreement between the seiqoldw and a paper. Administration of seiqol using the direct weighting dw procedure 2. We undertook a prospective study in which 120 patients with als completed two measures of qol, the seiqol dw and the. Quality of life is an increasingly important outcome measure in medicine and health care. The seiqoldw index scores did not change over an interval of 1 year, supporting the stability of the instrument. Pdf a cross sectional study on determinants of quality of.
Diagnostic uses of the vineland adaptive behavior scales. Assessing subjective quality of life domains after multiple. Our purpose was to develop an als staging system als milanotorino staging that captures the observed progressive loss of independence and function. We found that the seiqoldw is not a valid measure of quality of life, but rather assesses. Validity, reliability and responsiveness of the schedule for. However, no commonly used, validated staging system exists for amyotrophic lateral sclerosis als. Dec 17, 20 individualised and healthrelated quality of life of persons with spinal cord injury. This paper describes a brief measure, the seiqol dw, which is derived from the schedule for evaluation of individual quality of life seiqol. Schedule for the evaluation of individual quality of life seiqol.
At the return visit, qol was scored on both the pretreatment old cues and the new cues. This paper describes a brief measure, the seiqoldw, which is derived from the schedule for evaluation of individual quality of life seiqol. Understanding the determinants of quality of life qol in amyotrophic lateral sclerosis als has become increasingly important with the recent emphasis on the comprehensive management of patients. Pdf the experience of using the seiqoldw with patients. A comparison of four quality of life instruments in cardiac. Apr 10, 2020 the schedule for the evaluation of individual quality of lifedirect weighting seiqol dw is a prevalent facetoface interview method for measuring quality of life by integrating respondentgenerated dimensions. Seiqol schedule for the evaluation of individual quality of. The whoqolbref is an abbreviated 26item version of the whoqol100. Administration of seiqol using the direct weighting dw. The schedule for the evaluation of individual quality of life seiqol administration manual department of psychology medical school royal college of surgeons in ireland mercer building mercer st dublin 2 ireland ciaran a oboyle1, hannah m mcgee1, anne hickey1, c r b joyce2, john browne1, kevin omalley3, beat hiltbrunner4. Schedule for the evaluation of individual quality of lifedirect weighting definition the schedule for the evaluation of individual quality of life seiqol is an interviewbased instrument.
Age related differences in individual quality of life domains. The instrument measures individual quality of life and. Dw, the authors caution in interpreting total qol scores as it is the sum of the products of individual cue scores by cue weights, each of which may vary independently oboyle et al. Health, family, relationships, finances and social pastimes were the commonest cues nominated, but agegender differences existed. Department of psychology, royal college of surgeons in ireland. Seiqoldw score was not related to total mqol score. The schedule for the evaluation of the individual quality of lifedirect weighting seiqoldw has been used to measure quality of life qol in small cohorts of individuals with als, but its suitability for assessing aggregate qol for betweengroup comparisons is uncertain. The seiqoldw is administered in a facetoface interview. Patients with advanced copd were able to complete the seiqoldw but analysis of its administration identified practical and conceptual concerns which question the validity of the results obtained. To assess a childs understanding of these directions, each participant was asked to retell the directions to. The interviewer first elicits the five areas of life considered most important by the individual in determining hisher qol.
Subjects also rated their overall qol on a visual analogue scale vas from 0100 and satisfaction with their appearance of a scale of 010 at both visits. Mar 12, 2010 patients with advanced copd were able to complete the seiqoldw but analysis of its administration identified practical and conceptual concerns which question the validity of the results obtained. The seiqol dw is a valid method for measuring individual quality of life in stroke survivors attending a secondary prevention clinic authors sandra a. Since the seiqol dw is a selfreport instrument in which respondents nominate the five most important domains in life, interrater reliability and internal consistency were not relevant. This study was carried out to investigate the usefulness of the seiqol dw to elicit information about response shifts in palliative patients. A cross sectional study on determinants of quality of life in. Department of psychology, royal college of surgeons in ireland, 1995. Quality of life qol has become an important issue for patients with chronic renal failure diseases who are.
To evaluate the determinants of qol in als using two scales with different theoretical constructs. Application in a cohort of individuals with hivaids article pdf available in bmj clinical research 37048. A cross sectional study on determinants of quality of life in als. Objectives to compare the sensitivity of four measures when used in a group of cardiac patients undergoing the same. Quality of life and its correlates in octogenarians. Dublin, department of psychology, royal college of surgeons in ireland, 1993.
Suggestions for the development of the seiqoldw and future feasibility studies are given. Seiqoldw 15 was used to measure quality of life in the two studies. Schedule for the evaluation of individual quality of lifedirect weighting definition the schedule for the evaluation of individual quality of life seiqol is an interviewbased instrument to assess quality of life from the individuals perspective. For more details concerning the method of administration of seiqol, see the related manual 18, 21. Pdf the schedule for the evaluation of individual quality of life. Studying psychosocial adaptation to endstage renal disease. Impact of botulinum toxin a on the quality of life of.
Schedule for the evaluation of individual quality of life. A new short form individual quality of life measure seiqoldw. Many measures of quality of life present patients with predetermined lists of questions that may or may not be relevant to the individual patient. Therefore, our study aimed to analyze the agreement between the seiqol dw and a paper. Seiqoldw bmc medical research methodology biomed central. Objective this is an observational study on wellbeing and endoflife preferences in patients with amyotrophic lateral sclerosis als in the lockedin state lis in a polish sample within the eu joint programmeneurodegenerative disease research study needsinals 1. Research open access individual quality of life in patients. A new short form individual quality of life measure seiqol. Assessment of individual quality of life using the seiqol. Dublin, ireland, department of psychology, royal college of surgeons. The seiqoldw for assessing quality of life in als taylor.
Oboyle ca, mcgee hm, hickey a, joyce crb, browne j, omalley k, hiltbrunner b. Conversely, a significant correlation was found between seiqol dw and mqolsis. Department of psychology, royal college of surgeons, 2001. Whyte3 from the 1department of medicine and therapeutics, university of aberdeen, and departments of 2medicine for the elderly and 3neuropsychology, woodend hospital, grampian university. The direct weighing procedure was developed following observations that in many situations, the complexity and time necessary to apply the full seiqol made it unsuitable 15. The schedule for the evaluation of the individual quality of lifedirect weighting seiqol dw has been used to measure quality of life qol in small cohorts of individuals with als, but its suitability for assessing aggregate qol for betweengroup comparisons is uncertain. If participants are unable to volunteer domains, examples are read from a standard list that is included in the seiqoldw administration manual, and responses are noted as such. Feasibility and validity of a computer administered version of. Patients assessment of quality of life instruments. Individualised and healthrelated quality of life of persons with spinal cord injury. With both qol scales, the most important explicatory variable of qol was the self perceived quality of social support.
Qol was measured using the seiqoldw and the sf36 version 2. May 28, 2004 the seiqol dw index scores did not change over an interval of 1 year, supporting the stability of the instrument. One of the qol scales which is based on the calman approach is the schedule for the evaluation of individual quality of life, 7 now available in a shorter format, as the seiqol dw. It is administered in the form of a semistructured interview in three phases. Pdf a new short form individual quality of life measure. Background staging of disease severity is useful for prognosis, decisionmaking and resource planning. Individual quality of life in patients with multiple myeloma. Assessment of individual quality of life using the seiqol dw in older medical patients l. Evaluation of individual quality of life among hemodialysis. The seiqoldw is a valid method for measuring individual quality of life in stroke survivors attending a secondary prevention clinic authors sandra a.
Background with the increasing use of quality of life measures in evaluations of cardiac interventions, criteria are needed for selecting appropriate quality of life measures. Evaluation of the psychometric properties of the alssqol. Randomized controlled trial of a homebased palliative. Pdf the schedule for the evaluation of individual quality. We undertook a prospective study in which 120 patients with als completed two measures of qol, the seiqoldw and the. To amplify the low vas values, we enlarged the ordinate. To assess a childs understanding of these directions, each participant was asked to retell the directions to the interviewer.
The seiqoldr and the seiqoldw are recommended in clinical practice to take both negative and. Assessment of individual quality of life using the seiqoldw. A sented cases, while in the seiqoldw, patients can quan guide for conceptual clarity. Assessment of individual quality of life using the seiqoldw in older medical patients l. The schedule for the evaluation of individual quality of life seiqol. Individualized quality of life, standardized quality of life. Visual analogue scales vas were used to gain additional information about a general assessment of the present qol. The sample size was based on previous data for possms 5 and seiqol dw. To apply this method in clinical trials, a paperadministered alternative would be of interest. Given the physical limitations imposed by als, the seiqoldws administration procedures and instructions were modified for patients who were unable to mark the visual analog scale of functioning on each cue, or manipulate the seiqoldw disk independently. Physical status was not relevant in determining qol. The situation of patients with multiple myeloma, whose treatment often implies highdose chemotherapy and stem cell transplantation that can be associated with severe symptoms and psychological distress, has gained attention in recent psychooncological research.
The schedule for the evaluation of individual quality of. Development and evaluation of a clinical staging system for. Sf36 health survey manual and interpretation guide. Schedule for the evaluation of individual quality of life seiqol a direct weighting procedure for quality of life domains. An observational study on quality of life and preferences to. Paper a cross sectional study on determinants of quality of. Quality of life of children with spina bifida in kenya is not. Assessment of individual quality of life using the seiqoldw in. Conversely, a significant correlation was found between seiqoldw and mqolsis.
779 902 211 725 1156 1549 197 313 394 432 1657 1294 1197 1015 1534 343 62 1398 1655 118 245 1197 981 13 626 1179 656 1415 1077 499 371 1181